Cystic fibrosis
Parents want better communication when children are diagnosed with CF
By Tessa Hoffman
8 Mar 2018
Parents with an infant who has just been diagnosed with cystic fibrosis want facts – and don’t want to learn of the diagnosis over the phone. These are some of the findings from a survey of 26 parents at two Australian tertiary CF specialist centres, which researchers say highlights ways to better support families in ...
