Parents with an infant who has just been diagnosed with cystic fibrosis want facts – and don’t want to learn of the diagnosis over the phone. These are some of the findings from a survey of 26 parents at two Australian tertiary CF specialist centres, which researchers say highlights ways to better support families in ...
Cystic Fibrosis
Parents want better communication when children are diagnosed with CF
By Tessa Hoffman
8 Mar 2018