PODCAST: Helping young people with rheumatic disease transition from paediatric to adult care


In this podcast we talk to rheumatologist Dr Gabor Major, rheumatology clinical nurse consultant Fiona Niddrie and research fellow Dr David Tunnicliffe from the Adolescent and Young Adult with Rheumatic Disease (AYARD) clinic at John Hunter Hospital in Newcastle about the role clinicians and programs can play to help adolescents who grow out of the often nurturing and supportive paediatric health care system and struggle in the adult health care setting.

They share fascinating insights from their interview study that investigates how young rheumatology patients and their parents experience transition care. With up to half of adolescent patients who move to adult care lost to follow-up within 2 years, their findings shed a light on what can change to improve adolescent outcomes into adulthood.

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