UK families form CF Buyers Club to import generic Orkambi
By Jennie James
2 Jul 2019
In the UK, parents of children with cystic fibrosis have formed a buyers club in a bid to access a lower-cost version of Orkambi, the drug at the centre of a three-and-a-half-year pricing standoff between its manufacturer Vertex and NHS England. The club has been launched by more than 100 CF patients, parents and campaigners who ...