In the UK, parents of children with cystic fibrosis have formed a buyers club in a bid to access a lower-cost version of Orkambi, the drug at the centre of a three-and-a-half-year pricing standoff between its manufacturer Vertex and NHS England. The club has been launched by more than 100 CF patients, parents and campaigners who ...
UK families form CF Buyers Club to import generic Orkambi
By Jennie James
2 Jul 2019